When columnist Joe MacDonald woke up Saturday morning with a strained back, his son Caeleb offered his father some lessons in caregiving.
Zyryenj "Gft" S. Agoncillo says he is a testament that a person with a bleeding disorder can live a meaningful life and raise ...
I have two dogs, Laggie and Hildie, that are a mix of border collie and Australian shepherd. They’re 5 years old and came from the same litter, even sharing the same sac, which is pretty rare. Laggie ...
Hemophilia A treatments were linked to different immune patterns in children in a small study of Hemlibra and factor VIII ...
Nearly a third of U.S. hemophilia treatment centers lack genetic counseling services, despite their recognized value, a study ...
A photograph leads columnist Joe MacDonald to reflect on his son Julian's long journey with hemophilia, and the life he ...
Julian has severe hemophilia A. He hasn’t had any joint bleeds, but he went through almost three years of daily infusions into a port to eradicate an inhibitor. I was so proud of him, sitting at the ...
Researchers detailed the years-long process to develop Hympavzi (marstacimab), the once-weekly therapy for hemophilia A and B ...
Columnist Allyx Formalejo looks at the different perspectives of patients and caregivers, who both share the hemophilia story ...
Columnist Jennifer Lynne will be at the Coalition for Hemophilia B's Advocacy Summit so people in power get to meet someone with the disease.
MacDonald only learned over time that her experience with hemophilia was different than her sons' experiences.