A study found Evrysdi (risdiplam) helps the body produce more SMN, and also revealed genetic differences between SMA types 2 and 3.

For guest writer Maria Llave, having consistent access to Medicaid provides peace of mind, enabling her to focus on her future.

Columnist Helen Baldwin says she learned this lesson when her third baby, Jeffrey, was born with SMA in the late 1990s.

SMA Europe is accepting proposals for research projects, with motor regeneration and SMA metabolism among the priority areas ...

Restoring SNAP23 or replenishing these vesicles shows promise for improving bone health in SMA. Weak bones in people with ...

Treatment with Zolgensma helped children with SMA gain or maintain motor milestones and motor function, a real-world study in ...

Columnist Alyssa Silva planned to transition out of pediatric care, but an unexpected development finds her right back where ...

Columnist Brianna Albers says that moving out of her long-time home with SMA has turned out to be her biggest gamble yet.

Omaveloxolone (approved for Friedreich's ataxia) may help protect cells from stress and correct underlying dysfunction in SMA ...

Migraine drug flunarizine reversed abnormal microRNA patterns in SMA cells and mice, indicating the drug may help protect ...

Connie Chandler is the director of family engagement at the nonprofit organization We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and lives in Fort Wayne, Indiana.

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Parents of children with SMA reported significant unmet needs, ...